Alexis’s Story

2011 March 01

Created by alan glynn 9 years ago
Christina ate marmalade for the first time today, she picked it off my toast when me and Billy were sitting at breakfast. This reminded us how crazy the girls went for slices of orange, especially Alexis! Alexis was always very good with her food, we used to call her Tubs because she was bigger than Christina, while Christina was The Bean (because she was so small). My son chose Alexis Rose as her real name, he was very close to both the girls. In the week before Alexis died when she and Christina were ill with the sickness/diarrohea virus she didn't eat or drink very much at all, we think her teeth were hurting too. We had to syringe water into her mouth to get her to drink on the advice of the doctor we saw. She lost all her energy and mainly wanted to snuggle into me or Alan, which really wasn't like her. I was off work and wearing a red dressing gown most of the time to keep warm, which was really soft and I can still feel her cuddling in to it. I kept that dressing-gown and still have it because of that. It was only in the middle of the week when Alan and I were eating dinner in the livingroom, that she turned from her position on my knee and silently pointed at the food. Every time we gave her a mouthful she would eat it carefully and then point back for more. It was amazing to see her focus and we were so relieved she was on the mend. By the end of the week I was back at work- though the girls still had diarrohea, they were on their feet and back to their normal selves and eating and drinking and sleeping well. We had called the doctor midweek to ask if we should still be worried about the continuing diarrohea, but were told no, if they were having wet nappies and eating/drinking. It was only on Friday when I came home from work that Alexis seemed tired out (she had been playing all day with some other twins and her sister) and running a little temperature. However, she was still keen to eat and after some pasta I gave her a shower and put her in a sleepsuit. Her temperature was down by then and there was no sign of a rash. She went to sleep after the second attempt with a bottle and we thought no more about it, we were glad she was resting. Christina had developed a bad cough and we spent longer trying to get her chest to calm down before we laid her down too. When I passed Alexis I pushed her bottle to the side and touched her face by accident. She stirred in her sleep, but didn't seem troubled or fevered at all. This was the last time I would see her alive. This is the terrible thing about meningitis- it kills so quickly and often there is little warning. It very often appears after a child has had a cold or virus, so it can be confusing when your child seems to have been getting better. The best advice I could give anyone is to look at the symptoms which are shown on the Meningitis Trust page and if you have any gut feeling at all when your child is ill and showing any of the symptoms, act on it immediately and seek medical help as soon as you can. Even for doctors meningitis can be hard to catch in time. When I spoke to my doctor after Alexis had died he explained to me that they have a saying in medical school that today's virus could be tomorrow's meningitis, because some of the symptoms like a running nose and raised temperature could so easily be those of a cold/flu. It is only as the symptoms develop that meningitis may become more apparent. The shock of losing Alexis so suddenly is so hard to make sense of. That's why I think it is important that we share our experiences and support each other.